Chairman’s Update – Nii Plange

RFHKPA Chairman Nii Plange

Our dedicated team have created our new website

Our last printed RFHKPA Newsletter was published in April 2018 and we are very grateful that we have a dedicated team who have created our new website. We now are able to bring you the latest news and information from the Royal Free and its satellite units along with relevant information from the renal world which we hope that all of you will find something of interest on these pages. I am also pleased to tell you that the RFHKPA have dedicated Notice Boards in our Royal Free, Tottenham, St. Pancras & Edgware units. Barnet will follow in due course once we have found the appropriate space.

We are trying to increase communication

Our notice boards have served us reasonably well but not yet up to the full potential I want. Many patients look out for information on them and one of the positive results was that we were able to get more members attending our AGM 2018 and similarly our day outings this year, 2019.  We are also in the process of starting an information streaming service in the Mary Rankin unit (St. Pancras Kidney & Diabetes Centre). This will mean patients at the unit will be able to access information at any time irrespective of if they use a computer or not.

Membership of RFHKPA

You will all know that membership to RFHKPA is an issue that we keep repeating. It may be that new patients don’t know of our existence but there are many of you who know about us because you have benefited from the association one way or another. My message to those patients who are aware of the good work that we carry on, please tell your fellow patients to apply for membership.  All patients are entitled to be members of the RFHKPA but if you don’t apply to be a member, then we don’t know about you.

The association can signpost patients to areas of support and assistance when the need arises. There are many occasions when patients come to us, when a small problem has become a serious one. If you come to us early, we may be able to assist you better.  From 2020, patients who have registered with the association will be given priority, as they have consented for the association to contact them and chosen their communication preferences.  To join RFHKPA you can register here

We support organ donation events

The association is very active supporting organ donation events to raise awareness within our communities. We try to inform and educate dialysis patients on the possibilities of getting a transplant.  We recently played a part in organising an event within the black community at the COGIC church in Tottenham. This was advertised for patients to attend with friends and family and was well attended but more patients should have attended. The Live Donor Advocate Project led by Dr. Jeff Cove, which was promoted in one of our 2017 newsletters, but very few of our patients seem to be aware of the project or the possibilities of living kidney donation.  

Dr. Sarah Afuwape recently organised an event to raise awareness for young adults within the black community with the help of RFHKPA. The event and its message was widely seen on social media but I would have expected to see more of our patients attending.  We have two further projects on organ donation which we are supporting. A further project aimed at the black community and led by Sarah Afuwape. The second project is led by Dr. Phillip Masson which is aimed at increasing awareness of living kidney donation. This can lead to increased possibilities for our dialysis patients to have transplants with shorter waiting times.  It will be great to see more of you with your family and friends attending these events.

Thanks to all those who have helped in various ways to support the association. Thanks to all our donors for helping us to provide benefits for our fellow patients. And special thanks to all our consultants, nurses, dieticians, pharmacists, admin staff and support workers for helping us on our journey to a better quality of life.

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