RFHKPA

Welcome to your Kidney Patients’ Association website

The Royal Free Hospital Kidney Patients’ Association (RFHKPA) is a registered charity (number 277711). The association is run entirely on a voluntary basis for the benefit of renal patients and membership is open to all Royal Free London renal patients

The RFHKPA represents the interests of and raises issues on behalf of Royal Free London renal patients. We have patient representatives in satellite units at Edgware Kidney Care Centre, St. Pancras Kidney and Diabetes Centre, Tottenham Hale Kidney and Diabetes Centre and Barnet Dialysis Unit. RFHKPA provides advice and directs patients to appropriate services or organisations. We work closely with social workers to provide funds for patients with hardship problems.

This website has been produced so that the RFHKPA can provide information to all renal patients and their families. The Menu structure at the top of the Home page has drop-down lists to be used to find this information. If there is anything you cannot easily find from these lists, you can use the Search function,. The Search symbol, shown below, is at the right-hand end of the Menu bar. Enter a key word or two there, to get a list of the articles and/or websites referring to these terms.

Do you agree with organ donation and want to help make a change?

If you do, the Royal Free London GIVE-IT Project is looking for enthusiastic African, African-Caribbean and Hindu, trailblazers willing to take a stand by volunteering to help raise awareness for organ donation.

If you are interested, please click on the link below for more information:

Royal Free Hospital organ donation patient and champion honoured by Queen

12 June 2021

A kidney patient of nearly 30 years at the Royal Free Hospital has been awarded the British Empire Medal in the Queen’s 2021 Birthday Honours List for services to renal patients.David Myers spent eight years on dialysis before receiving his first kidney transplant at the Royal Free Hospital in 1998. He then received a live kidney transplant in 2017, as part of a three-pair pooled kidney transplant exchange where his wife, Martha, donated a kidney to a stranger so that all the operations could be successfully completed.

David, who is chair of the Royal Free Organ Donation Committee and life president of the Royal Free Hospital Kidney Patients Association (RFHKPA), said: “I have been working on behalf of my fellow kidney patients for over 20 years. I have been promoting organ donation, in particular living kidney donation, for many years to communities served by the Royal Free London group. I also recently completed my third term as a Royal Free Hospital governor, where I looked after the interests of all patients. I feel very grateful to be awarded this honour but it would not have happened without the amazing care and treatment I have had from the Royal Free Hospital renal team and this incredible NHS system, which has given me additional years to live my life, share that with Martha and also the strength to carry on with my work. I have always said, whatever I do for kidney patients, I can never pay back what I have received from the NHS. I feel that I will be accepting this honour on behalf of my long-term consultants Peter Dupont, Andrew Davenport, surgeons Bimbi and Ossie Fernando, Royal Free Hospital medical director and renal consultant John Connolly and also my colleagues from RFHKPA and the Royal Free Organ Donation Committee.”

Kate Slemeck, chief executive of the Royal Free Hospital, said: “We would like to be the first to congratulate David on his well-deserved award. David’s tireless work to promote organ donation, across all our communities, is outstanding.  He is also a passionate patient advocate and is someone we are very proud to call a friend of the Trust.”

To read more about David and Martha’s experiences, click on the link below:

Sally Hamour, the Royal Free’s new Clinical Director Nephrology, Urology, Transplantation advises renal patients to join the RFHKPA

Dr Sally Hamour FRCP, PhD, Divisional Clinical Director Nephrology, Urology, Transplantation, Royal Free London:

“It is important for patients to join the RFHKPA. There are lots of different ways to influence development of the Royal Free London’s renal service, but one of the most effective is joining the KPA, because their voice is heard. Over the years the KPA has been instrumental in advising on the Trust’s plans to provide renal services that work for our patients. The KPA helped choose the locations and layouts of our new dialysis units, how we use transport, supporting our education and information programmes, advertising what is new, and explaining what is happening for patients using our service.”

We are looking for help with the book-keeping of the RFHKPA

Do you have accounting experience? Can you spare time to help keep our records straight and complete accounts up to draft stage? If so, then we would like to hear from you. The ideal candidate will be a Royal Free kidney patient happy to provide voluntary services for the benefit of fellow renal patients.

If you are interested, please send your details or CV to:

rfhkpa@gmail.com

Chairman’s Update – Nii Plange

RFHKPA Chairman Nii Plange

Our last printed RFHKPA Newsletter was published in April 2018 and we are very grateful that we have a dedicated team who have created our new website. We now are able to bring you the latest news and information from the Royal Free and its satellite units along with relevant information from the renal world which we hope that all of you will find something of interest on these pages. I am also pleased to tell you that the RFHKPA have dedicated Notice Boards in our Royal Free, Tottenham, St. Pancras & Edgware units. Barnet will follow in due course once we have found the appropriate space. …

President Update – David Myers

Welcome to our RFHKPA website. We’ve just mailed out a letter to nearly 10,000 patients who are coded as Royal Free renal patients so many of you will be new to learning about what our charity does. Thank you for going to the trouble of completing our application form for confirmation of your membership to our association. It’s the only way we can keep in touch with you and pass on any important information that in particular the renal team need to tell you about.  Essentially, we are here to provide help and direct patients with concerns in the right direction to where they can get answers. We are also able to provide financial help to patients with hardship problems. And we organise social events for our members throughout the year, once circumstances allow us. You will see there is an awful lot of kidney information to be found on this website.